tag:blogger.com,1999:blog-7272077205623712290.post4602216110632653176..comments2023-05-28T03:40:49.110-04:00Comments on Willow and Me: Wegener's: My Journey (Part I)Lisa and Willowhttp://www.blogger.com/profile/01254192620652617374noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7272077205623712290.post-46988017071991012692010-09-12T19:28:35.385-04:002010-09-12T19:28:35.385-04:00My wife has been battling Wegener's for more t...My wife has been battling Wegener's for more than 6 years now (just finally obtained a diagnosis this year - although the collective symptoms have only added up to that, and we have suspected it for the past 5 years - the medical profession in most cases just doesn't seem to be able to get this). We live in Lewiston; you can contact my email: <br />dchick@ci.lewiston.me.us <br />Maybe it would be possible to arrange a meeting where she could talk with you... There has been no one who can relate, and this illness is so rare that it has been difficult to find an actual person to contact!<br />(p.s. She likes cats too)Unknownhttps://www.blogger.com/profile/08354543573098569588noreply@blogger.comtag:blogger.com,1999:blog-7272077205623712290.post-49064187291662684422010-04-08T10:07:25.835-04:002010-04-08T10:07:25.835-04:00Thanks everyone. Things are now better than they ...Thanks everyone. Things are now better than they sound in this post, I just didn't want to make it too long, plus I wanted to give an idea as to what kinds of symptoms go along with Wegener's. I have since found a wonderful and very capable specialist in Boston. More on that in my next post.Lisa and Willowhttps://www.blogger.com/profile/01254192620652617374noreply@blogger.comtag:blogger.com,1999:blog-7272077205623712290.post-83314877171052165552010-04-07T18:31:35.014-04:002010-04-07T18:31:35.014-04:00Nice post Lisa.. sorry about your plight!
Keep up ...Nice post Lisa.. sorry about your plight!<br />Keep up the hard work on being your OWN Advocate<br />though. I really believe you have to do that..I don't think Dr's "know it all".. hopefully you find relief without going into surgery!!bluemoosehttps://www.blogger.com/profile/11093460502321053679noreply@blogger.comtag:blogger.com,1999:blog-7272077205623712290.post-23975985440463568322010-04-07T17:05:54.584-04:002010-04-07T17:05:54.584-04:00What a year you've had! I'm loving reading...What a year you've had! I'm loving reading about it, and that you're spreading the word. I'm going to go twitter, facebook, and blog about it now! :DPaigehttps://www.blogger.com/profile/12410624862550755871noreply@blogger.comtag:blogger.com,1999:blog-7272077205623712290.post-35460606439348247202010-04-07T16:21:50.559-04:002010-04-07T16:21:50.559-04:00Wow!! What a story so far! So sorry that you'...Wow!! What a story so far! So sorry that you've gone through all of this.Jamie Ribisi-Braleyhttps://www.blogger.com/profile/11163112845124859165noreply@blogger.com